End of Life Care
Overarching aim: To provide strategic leadership and expert clinical support to commissioners and providers around end of life care in London. The network will deliver on a number of local priorities, as well support the national end of life care strategy. The network will serve as the clinical arm of the Pan London End of Life Care Alliance.
- Clinical Director: Dr Caroline Stirling, Clinical Lead and Consultant in Palliative Medicine, End of Life Care Lead UCLPartners, Camden, Islington ELiPSe, and UCLH and HCA Palliative Care Service CNWL
- Clinical Lead: Dr Lyndsey Williams, Macmillam GP Brent EOL, Clinical Director Brent CCG
- Programme Lead for Dementia and EOLC Clinical Networks: Laura Cook
- Senior Clinical Project Manager: Lucy Quinn
- Project Manager: Funmi Adewunmi Bisi-Adewole
Please contact Lucy Quinn (firstname.lastname@example.org or 07730375561) for any enquires.
Clinical leadership group
Learn more about the End of Life Care Clinical Leadership Group, and download CLG resources on the End of Life Care CLG page.
Download resources from the End of Life Care Clinical Network through our Publications page.
- Transform experience of EOLC in hospitals and the community
- Enhancing physical and mental wellbeing of the individual
- Commissioning quality services that are accessible to all when needed
End of life care (EOLC) has been recognised as a national priority with the publication of a national strategy and appointment of Dr Bee Wee as National Clinical Director for EOLC. While end of life care appears to be improving nationally London faces a number of unique challenges from a higher then average number of patients dying in hospital to inequality of service provision by borough or locality. The EOLC Alliance links the EOLC network (a major stakeholder), the London Social Care Partnership EOLC network and an EOLC lay member network. The Alliance serves to support the implementation of effective EOLC commissioning and delivery models which will translate into better EOLC for individuals, carers and their families. Currently the Alliance is exploring the development of a voluntary sector network for EOLC in the capital. Clare O’Sullivan has written a blog post reflecting on end of life care commissioning, to read it please click here
London End of Life BEREAVEMENT RESOURCE
In 2018/19 the NHSE (London region) End of Life Care Clinical Network undertook a project focusing on the provision and availability of information to support bereaved Londoners.
The Enhancing Physical and Mental Wellbeing working group of the Network, who led the project, established that there is a lot of information and services available to bereaved people, but that access to this is not universal. This can result in people not receiving relevant information and support and in turn being at risk of physical and mental ill health.
The group has therefore developed an A5 leaflet signposting people to key resources related to bereavement. The leaflet was co-produced by professionals and citizens with lived experience of bereavement and received feedback from the public to influence the final design.
The leaflet has been piloted at two London borough Registrar’s offices and in community hub settings with excellent feedback:
‘easily distributed due to it’s small size’ – Paul Parsons, Bereavement Service Coordinator, St Christopher’s Hospice
‘a very good resource providing a supportive way to reach out to people’ – Ms Dexsha Mevada, Westminster Registrar
London End of Life Care event
The London EOLC Clinical Network held a regional EOLC event on 2nd May 2019.
London EOLC and Homelessness Event
The London End of Life Clinical Network in conjunction with Healthy London Partnership, St Mungo’s, Hospice UK and Ministry of Housing, Communities & Local Government hosted a EOLC and homelessness event on 19 October 2018.
Dying Matters week | 14-20 May 2018 In recognition of Dying Matters Awareness Week, 14-20 May, the End of Life Care Clinical Network reflects on its achievements and activities and to promote its publication, What is a good death?.
PALLIATIVE CARE REFERRAL FORMS
These specialist palliative care referral forms have been by the London Cancer Alliance / RM Partners palliative care group, but are based on versions that have developed over a number of years. They have been designed specifically to be used by hospital teams, GPs, and other potential referral sources, to refer to specialist palliative care services outside of hospital services. They are intended to be used when wishing to refer a specific patient for either community palliative care and/or SPC Inpatient Units (whether in hospice or hospital units). They are available both in PDF format, which can be printed off and completed by hand (and either Faxed or scanned and then emailed), or in Word format, which can be completed online and then emailed; in both instances, please email only to the preferred service’s secure NHS Mail referral in-box. Because fax machines are still being used by some referral sources, there is still a space for fax information. It is to be hoped in time that this can be removed. Because of the historical organisation of cancer services across London, there are two separate forms, one covering north west, south west and south east London and one other covering north central and north east London. North Central and North East London: PDF form or Word form South and West London: PDF form or Word form
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